




98 N. Washington St., Falls Church, VA 22046, 703-532-3214, www.thearcofnova.org Affiliate of the National ARC, with supporting programs for people with developmental disabilities. Autism Society Northern Virginia, Kymberly DeLoatche, Executive Director, 98 N. Washington St., Falls Church VA 22046, 703-495-8444, www.asanv.org, asanv.ed@gmail.com, ASA chapters are your best source of information and support. Most chapters are volunteer-led by parents, care providers and other professionals. ASA has chapters in nearly every state reaching out to individuals with autism and their families with information, support, and encouragement. A chapter is the place where: * Dedicated parent and professional volunteers provide information and services specific to a local area * Parents can find resources for recently diagnosed children * Families can find comfort and companionship managing the years of growth and change * Local grassroots advocacy is organized for implementing change where change is necessary The purpose of this organization (ASA-NV) shall be to promote the general welfare of children and adults with autism and to provide support for their families; to support the education, vocational training and recreation of those with autism; to aid in the collection and dissemination of information to parents, professionals and the general public and to foster and reinforce awareness and respect for the rights of parents as the prime case managers in their autistic family member's life. We publish a monthly newsletter with a circulation of approximately 1400. The newsletter keeps chapter members informed about information on autism and related disorders. It includes news articles, personal vignettes, and notices of upcoming seminars and conferences. The newsletter is collated, stapled, and prepared for mailing by local high school students with autism. The newsletter was honored with the "Best Newsletter" award at the 1995 Annual Convention of the Autism Society of America. Brain Injury Association of VA, 3212 Cutshaw Avenue, Suite 315, Richmond, VA 23230, 804-355-5748; 800- 334-8443 (in VA), www.biav.net CL!X Portrait Studios Special Kids Program Serving Special Needs Children and their families CLIX Portrait Studios 2499 N. Harrison St. LL-2 Arlington, VA 22207 703-532-4752, www.clixportraitstudios.com We understand some of the challenges that exist for those with disabilities or serious illnesses when it comes to having professional portraits taken. The CLIX Special Kids program will give your child or family the individualized care needed to capture artistic and lasting images that you will cherish forever. With experience, patience and kindness, Michelle, the owner of CLIX Portrait Studios in Arlington (a mother of a special needs child herself) will conduct photo sessions for children with special needs and their parents and siblings. The studio has adequate space and ceiling mounted lights which move easily to accommodate wheelchairs or special equipment. A limited number of appointments can be scheduled when the studio is closed to the public (usually Thursday mornings). Our attitude is one of welcoming acceptance of children of any ability level. Each Special Kids Session will include a pre-session consultation in person or by phone so that we can better understand your child’s needs abilities and temperament and together we will plan the session accordingly. A portrait session will typically last about 45-60 minutes. Images will be edited and ready quickly for your review at a separate appointment, scheduled at your convenience. Fee for a Special Kids studio session is $50 for the first visit and $25 thereafter. Special Kids Program participants automatically receive CLIX CLUB prices (10% off all in- studio purchases) for their portrait purchases. Please call CLIX Portrait Studios at 703-532-4752 to schedule a Special Kids appointment with Michelle. DOWN SYNDROME ASSOC. OF NORTHERN VIRGINIA, 98 N. Washington Street, Falls Church, VA 22046, 703-621-7129, www.dsanv.org • Helps families adjust to the birth of a child with Down syndrome • Provides individuals with Down syndrome and their families with educational, financial, medical, legal and social support and resources • Provides social and educational events for individuals with Down syndrome and their families to meet, interact and learn • Works to increase community awareness of the capabilities and contributions of individuals with Down syndrome • Provides financial support to families in need with donations of durable medical equipment, educational toys and similar equipment • Supports local organizations that provide services to individuals with Down syndrome Easter Seals Virginia, 8003 Franklin Farms Dr., Suite 100, Richmond, VA 23229, 804-287-1007, 866-874-4153, va.easterseals.com Easter Seals Child Development Centers provide early education and full-day child care for children with and without disabilities, ages six weeks through five years. Our staff are specially trained to work with children with a wide range of disabilities and developmental delays, helping children of all abilities work toward their developmental goals at a time in their lives when they are most ready to learn. Easter Seals Child Development Centers practice inclusion, placing children with and without disabilities in the same classrooms and activities. These settings enable children with disabilities to learn and grow by imitating the actions of their nondisabled peers. Children without disabilities learn at an early age to understand, respect and accept differences. Epilepsy Foundation of Virginia, 500 Ray C. Hunt Drive First Floor, Charlottesville, VA 22903, Mail address: P.O. Box 800659, UVA Health Center, Charlottesville, VA 22908, 434 924-8669, www.efva.org Foundation of Virginia was established in 1978 to promote awareness about epilepsy and provide assistance to those with the disorder. On an annual basis, we help educate around 6,000 consumers with epilepsy and their families and friends to live with epilepsy. In our annual surveys of consumer's main concerns the top priority is invariably promoting awareness. To this day, consumers alert us about the inappropriate reactions when someone has a seizure. Fairfax County Disability Services Planning and Development helps people with disabilities in the Fairfax Area become self sufficient by connecting them with the resources they need through information and referral, guidance, education, and problem solutions surrounding the Americans with Disabilities Act and other laws and policies protecting the civil rights and services of people with disabilities. www.fairfaxcounty.gov/dsb 703-324-5421 or 703-449-1186 (TTY) disabilityservices@fairfaxcounty.gov The Fairfax Area Disability Services Board, 703-324- 5421, TTY 703-449-1186, Fax: 703-449-8689 E-mail: Disability Services Board Office Hours: Monday-Friday, 8 a.m.-4:30 p.m. Address: 12011 Government Center Parkway, Suite 708; Fairfax, VA 22035-1104 The Fairfax Area Disability Services Board represents persons with physical and sensory disabilities in Fairfax County and the cities of Fairfax and Falls Church. has 15 representatives, all appointed by the Fairfax County Board of Supervisors. The board represents and advocates for people with disabilities in the Fairfax area, and its monthly meetings are open to the public. More information about the board can be found at www.fairfaxcounty.gov/dsb. The board’s mission is to include people with disabilities into community life by identifying, communicating, and advocating their diverse abilities and needs to state and local governments and the private sector, and to provide resources to meet the needs of persons with disabilities. Interdisciplinary Council on Developmental and Learning Disorders, 4938 Hampden Lane, Ste 800, Bethesda, Maryland 20814, 301-656-2667, www.icdl.com ICDL reaches a wide network of parents and professionals of different disciplines in every state and in more than 80 countries in all continents, advancing the identification, prevention and treatment of developmental and learning disorders. Through its research, training and publications, ICDL has created a cadre of world class professionals across multiple areas of expertise that is extending the reach of the DIR® model and the framework of Floortime as a fundamental component of intervention programs for individuals with difficulties in relating, communicating and thinking, including autism spectrum disorders. Its research focuses on improving understanding of developmental pathways leading to developmental and emotional disorders and the best way to intervene. Learning Disabilities Association of Virginia (LDAV), Randolph Towers, #505, 4100 North 9th Street, Arlington, VA 22203, 703-243-2614, www.ldavirginia.org The Learning Disabilities Assocation of Virginia (LDAV) is a state-level affiliate of the Learning Disabilities Association of America (LDA). Our organization focuses on enhancing educational and vocational services for individuals with learning disabilities who live in Virginia while supporting the efforts of LDA at the national level. NAMI Northern Virginia Reston, VA, 20190-5306, www.naminova.org NAMI Virginia (the National Alliance on Mental Illness of Virginia) was created in 1985 to provide support, education, and advocacy for consumers and families in Virginia affected by mental illness. It is our mission to improve the lives of all those who are affected by serious brain disorders and to fight the stigma that surrounds mental illness. National Vaccine Information Center, (NVIC) The National Vaccine Information Center (NVIC) is the oldest and largest consumer organization advocating the institution of vaccine safety and informed consent protections in the mass vaccination system, NVIC is responsible for launching the vaccine safety and informed consent movement in America in the early 1980's. NVIC is dedicated to the prevention of vaccine injuries and deaths through public education and to defending the informed consent ethic. As an independent clearinghouse for information on diseases and vaccines, NVIC does not promote the use of vaccines and does not advise against the use of vaccines. We support the availability of all preventive health care options, including vaccination, and the right of consumers to make educated, voluntary health care choices. NVIC provides assistance to those who have suffered vaccine reactions; promotes research to evaluate vaccine safety and effectiveness, as well as to identify factors which place individuals at high risk for suffering vaccine reactions; and monitors vaccine research, development, regulation, policy-making and legislation. NVIC works to protect the right of citizens to exercise the human right to informed consent to medical interventions which carry a risk of injury or death for themselves or their children, including vaccination. WWW.NVIC.ORG Our Kids highlights activities that are fun for children and parent-friendly in the DC Metro Area, www.our-kids.com Our Kids highlights activities that are fun for children and parent-friendly in the DC Metro Area, www.our-kids.comOur Kids highlights activities that are fun for children and parent- friendly in the DC Metro Area, www.our-kids.comOur Kids highlights activities that are fun for children and parent- friendly in the DC Metro Area, www.our-kids.com Parent Allies for Student Success (PASS), 951 South George Mason Drive, Suite 204, Arlington, VA 22204, 703-979-3200, www.passtoday.org Parent Allies for Student Success (PASS) is a non-profit organization founded in response to the need for parents to have access to support systems and information to better navigate the school system. PASS resulted from the collaboration of: * NAACP Arlington Branch * National Association for the Advancement of Colored People * GMU George Mason University, Graduate School of Education and Human Development * PEATC Parent Education Advocacy Training Center * C4S Computers 4 Students * AT&T Public Relations and Community Outreach The organizations represented in this project bring with them expertise and a strong history of community collaboration and partnerships. Parent Education Advocacy Training Center, (PEATC), 100 N Washington St., Suite 234, Falls Church, VA 22046- 4523, 703-923-0010, www.peatc.org Building positive futures for Virginia’s children by working collaboratively with families, schools and communities in order to improve opportunities for excellence in education and success in school and community life. Our special focus is children with disabilities. We accomplish this by offering: * Services and support for families and professionals * Easy-to-understand, research-based information and training * Opportunities for strategic partnerships and advocacy for systemic improvement The Parent Educational Advocacy Training Center (PEATC) has a free iPhone IEP checklist app, available in English and Spanish. www.peatc.org/peatc.cgim? template=iPhonePressReleaseKit Partnership for People with Disabilities, 700 East Franklin Street, 10th Floor, Richmond, Virginia 23284, 804-828-3876, www.vcu.edu/partnership The Partnership for People with Disabilities is recognized throughout the Commonwealth of Virginia for its strong programs supporting families, individuals, and service providers in the Early Intervention/Education arena. All children, including those with disabilities, deserve the supports they need to excel in their homes, schools, and communities. To foster this level of success, the Partnership is working to equip family members, health care providers, preschool teachers, day care providers, and others serving who serve infants and young children and their families with the awareness, skills and training needed to make a difference in their lives. Parent Encouragement Program (PEP), Inc. is a non- profit educational organization for parents, teachers and others who want to deal constructively with children and teens. PEP is dedicated to the building and strengthening of healthy, harmonious adult-child relationships in the home or classroom. Locations:, D.C., Maryland and Virginia, 301 929-8824, www.parentencouragement.org PROGRAMS FOR CHILDREN WITH SPECIAL HEALTH CARE NEEDS Division of Child & Adolescent Health, Virginia Department of Health P.O. Box 2448, Richmond, VA 23218, 804-786- 7367, www.vahealth.org/specialchildren Special Love, Inc. Specialove for children with cancer, www.specialove.org Special Love Headquarters: 117 Youth Development Court, Winchester, VA 22602 540-667-3774 or 888-930-2707, fax: 540-667-8144 Every kid has the right to be a kid. That's why Special Love gives children and young adults with cancer and their families a chance to enjoy normal childhood activities that healthy kids often take for granted. From week-long camps, like Camp Fantastic and BRASS Camp (for siblings), to weekend retreats for families, teens, and young adults, Special Love's programs represent a community of support that shows kids with cancer and their families that they are not alone. Speech-Language-Hearing Association of Virginia, Inc. (SHAV), 3126 W. Cary Street #436, Richmond, VA 23221-3504, 888-729-7428 (SHAV), www.shav.org, shavoffice@shav.org The mission of the Speech-Language-Hearing Association of Virginia (SHAV) is to serve as a resource for speech- language pathology and audiology professionals, promote professional excellence, and empower members to advocate for the professions and the individuals they serve. UCP of Washington DC & Northern Virginia, 1818 New York Avenue, NE, Suite 101, Washington, DC 20002, 202- 526-0146, www.upcdc.org United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. As one of the largest health charities in America, the UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network. Virginia Assistive Technology System, 8004 Franklin Farms Drive, Richmond Virginia 23229, 804-662-9990, www.vats.org The mission of the Virginia Assistive Technology System (VATS) is to ensure that Virginians of all ages and abilities can acquire the appropriate, affordable assistive and information technologies and services they need to participate in society as active citizens. Virginia Autism Resource Center, P.O. Box 1300, Stephens City, Virginia 22655, 877-667-7771; 540-869-3377, www.grafton.org Virginia PTA, 1027 Wilmer Ave., Richmond, Virginia 23227-2419, 804-264-1234, www.vapta.org The Virginia Congress of Parents and Teachers, better known as the Virginia PTA is a volunteer child advocacy association working for ALL children and youth in the Commonwealth of Virginia. The Virginia PTA is the strongest group of volunteers in the state working exclusively on behalf of children and youth. Chartered by the National PTA in 1921, the primary goal of the Virginia PTA is to strengthen our family units, our schools and our communities through parent/family involvement. PTA recognizes parents as the first educators in the home and works to promote parents as partners in the school. VSA arts of Virginia, Zero E. 4th Street, Studio 50, Richmond, Virginia 23224, 804-230-0246, www.vsarts.org VSA arts of Virginia promotes the arts, education, and creative expression, involving children and adults with disabilities, thereby strengthening the human spirit and improving the quality of life for all. WADDELL GROUP, Christopher Waddell, CFP®, Managing Principal, An Independent Firm, 1960 Gallows Road, Suite 110, Vienna, VA 22182, 703-881-9173, 703-881-9174 fax, 703-801-2107 mobile, christopher.waddell@raymondjames.com, www.waddellgroup.net As parents (of three children-two of whom have special needs) and financial advisors, we have a unique commitment to helping other families with special needs achieve financial security. ASD friendly salons/barbers in the NOVA areas Youth Salons, provides on location salon services to families in Northern Virginia and surrounding areas. No more crazy waiting rooms. Our licensed stylists all have over 15 years each of experience working with children. Our services includes haircuts for all ages (kids, parents, all extended family), school/daycare group haircuts, styling for special occasions, haircut play dates, Locks Of Love haircuts, hair color for all ages, glamour parties, fundraisers and lice removal. We also carry Fairy Tales, all natural organic hair care for children and Circle of Friends. We also can get most salon products and save the customer a few dollars. You can find Youth Salons at www.youthsalons.com which has a request form or contact Cindy at 571-481-6963 and cindy@youthsalons.com. Cartoon Cuts Springfield Mall: 703-719-9191 Dulles Town Center: 21100 Dulles Town Centre, Dulles, VA, 703-433-1440 Smoketown Stations, 14066 Shoppers Best Way Woodbridge, VA, 703-670-3400 Fair Oaks Mall: 703-359-2887 "We used to use the Cartoon Cuts in the mall b/c you could put in a video. I would just make sure to go on an "off" time and build a relationship with one of the barbers. I would put in a video that my son picked but I would make sure it wasn't a long one OR if it was, I would make sure it was wound to close to the end so it wouldn't go long and we have to watch it from the beginning or have a fit on the floor. Now my husband takes him to the place he has gotten his hair cut for years. I can ask if it is a place that would work or if it only works b/c they have known him for so long. You know: they do it b/c they have to or they really get it." T., Fairfax, VA Hair Cuttery, www.haircuttery.com "We go to the Hair Cuttery in the shopping center with K- Mart and Trader Joe's off Franconia in the Springfield area. Suna and Carment are both great with my son." R., Arlington, VA Northern Virginia Autism Resources This is a website for Northern VA families with all the Autism/Aspergers info I've collected through the years. It has resources and also activities of interest in the area. Please take a look and let me know if you have anything to add. http://sites. google.com/ site/northernvirginiaautism |